The Advocate’s Bookstore

The Advocate’s Bookstore offers resources on specific disabilities, effective educational practices, tests, evaluations, legal rights and responsibilities, parenting, and children’s issues.

Black Mental Wellness

Black Mental Wellness provides access to evidence-based information and resources about mental health and behavioral health topics from a Black perspective, to highlight and increase the diversity of mental health professionals, and to decrease the mental health stigma in the Black community.

La Coalición Nacional para Latinx con Discapacidades (CNLD)/ Latinx Disability Coalition 

CNLD works to affirm, celebrate, and uplift Latinxs with dis/abilities through community-building, advocacy, protection of rights, resources, and education.

MUHSEN (Muslims Understanding & Helping Special Education Needs)

MUHSEN provides education and support to promote inclusion of people with disabilities throughout mosques and Muslim communities in the U.S.

National Association of the Deaf (NAD)

NAD works to uplift the self-esteem and confidence of deaf youth through mentorship, skills training, and coaching. It provides advocacy for BIPOC students who are deaf, deafblind, deafdisabled, and hard of hearing, and offers ASL resources for deaf babies.

The National Disability Rights Network (NDRN)

NDRN offers legal information and tips on how to be an effective advocate by providing fact sheets and court cases as examples, as well as a list of common acronyms and terms to help clarify the legal jargon and abbreviations.

RAD (Rainbow Alliance of the Deaf)

RAD advocates for the rights and interests of the deaf LGBTIQA+ community, supporting education and economics and encouraging active participation in the improvement of the social welfare of the deaf LGBTIQA+ community.

RespectAbility

RespectAbility empowers diverse people with disabilities to gain the training and skills they need to take a seat at the table, and works toward increasing representation of disabled people to drive systemic change in the ways society views and values people with disabilities.

South Asian Sexual & Mental Health Alliance (SASMHA)

SASMHA works to break stigmas and build knowledge in the South Asian community around depression, anxiety, substance abuse, and more.

Financial Assistance and Support Services for People with Disabilities

This database presents a wide range of programs and tools to help with housing, taxes, medical bills, service and emotional support animals, and more.

Patient Advocate Foundation

The Patient Advocate Foundation works with patients and insurers, employers, and/or creditors to resolve insurance, job retention, and/or debt problems related to a diagnosis when a claim has been denied.

APA (American Psychological Association) Inclusive Language Guidelines

An evolving set of guidelines that aim to raise awareness, guide learning, and support the use of culturally sensitive terms and phrases as well as explaining the origins of problematic terms and phrases.

Building Partnerships Between Parents and Practitioners, from the National Council for Curriculum and Assessment (NCCA)

NCCA provides guidance about building partnerships between parents and practitioners to support children and families.

Good Practice in Working with Parents of Disabled Children, from the National Academy for Parenting Practitioners 

This handbook aims to increase professionals’ knowledge and confidence in understanding the needs of parents and families caring for disabled children, and provides an overview of key themes emerging from the evidence base about effective ways of working with parents of disabled children.

Resources for Clinicians from the American Academy of Child & Adolescent Psychiatry (AACAP) 

AACAP provides information about special education policy and guidance for parents, guardians, and educators to support collaboration between school and home.

UNICEF School Guide to Supporting Marginalized Caregivers of Children with Disabilities

UNICEF provides this guide for schools and educators working with marginalized families of children with disabilities to help them identify the needs, challenges, and solutions for affected families.

Zero-to-Three

Zero-to-Three plays a key role in ensuring that babies and toddlers get a strong start in life by providing parents with practical resources that help them connect more positively, deeply, and continuously with their babies; providing professionals with knowledge and tools that help them support healthy early development; and promoting policy to support and strengthen families.

AbilityOne

AbilityOne taps America’s under-utilized workforce of individuals who are blind or have other significant disabilities to deliver high-quality, mission-essential products and services to Federal agencies in quality employment opportunities.

Mobility International USA (MIUSA)

MIUSA is a clearinghouse for parents and guardians about educational opportunities for individuals with disabilities.

National Association of State Directors of Developmental Disability Services (NASDDDS)

NASDDS provides complete, up-to-date contact information to help parents and guardians connect easily with the office of the developmental disability in every state in the US.

The National Federation of Families (NFF)

NFF works to develop and implement policies, legislation, funding mechanisms, and service systems that utilize the strengths of families, offering families a voice in the formation of national policy, services, and supports for their children with mental health needs and substance use challenges across the lifespan.

Tourette Association of America, Resource Directory

The Tourette Association of America (formerly known as the Tourette syndrome Association) is the only national organization serving the Tourette syndrome community, and works to raise awareness, advance research, and provide ongoing support to patients and families impacted by Tourette syndrome and tic disorders.

Child Mind Institute

The Child Mind Institute provides gold-standard, evidence-based clinical services, educational resources to families, training to educators in underserved communities, and research on the developing brain.

Human Rights Campaign’s (HRC’s) Guide for Advocating for LGBTQ+ Students with Disabilities

HRC offers this comprehensive guide to help educators and parents/guardians support LGBTQ+ students who have an IEP or 504 Plan.

The National Center for Learning Disabilities (NCLD) Parent- School Advocacy Toolkit 

NCLD’s Parent-School Advocacy Toolkit empowers parents and guardians to understand the local, state, and federal education systems and provides them with information and tools to seize opportunities and overcome challenges.

Resources for Parents from the American Academy of Child & Adolescent Psychiatry (AACAP) 

AACAP provides consumer-friendly definitions and answers to frequently asked questions about special education policy, regulations, and inclusion.

Job Accommodation Network (JAN)

JAN assists individuals with medical conditions and disabilities, their advocates, and family members by providing information about job accommodations, the Americans with Disabilities Act (ADA), guidance about when to disclose a disability, and how to request and negotiate accommodations.

State Vocational Rehabilitation Agencies

Vocational Rehab provide career counseling, job training, and job placement services for people with disabilities. Counselors at these agencies work closely with job seekers to help them find, manage, and keep jobs.

Parent Center Hub

Parent Center Hub offers resources and networks for families raising children with disabilities, including a ‘hub’ of materials such as family-friendly information, research-based materials, parent training and information centers, and community parent resource centers across the US.

Dads Appreciating Down Syndrome (D.A.D.S.)

D.A.D.S. provides support for fathers and families of individuals with Down syndrome.

Dads M.O.V.E. (Dads, Mentoring Others Through Voices of Experience)

Dads M.O.V.E. strengthens the father’s role in raising children who have behavioral health needs through education, peer support and advocacy. Dads M.O.V.E. seeks to provide every parent/caregiver (especially dads) with the tools, support, and training needed to be fully engaged in the lives and progress of their children.

The National Center for Fathering (NCF)

NCF works to improve the lives of children and reverse the trends of fatherlessness by inspiring and equipping fathers, grandfathers, and father figures to be actively engaged in the life of every child. NCF offers a blog for fathers of kids with disabilities to establish positive fathering that will impact future generations by equipping fathers and father figures to be actively engaged in the lives of their children.

National Responsible Fatherhood Clearinghouse (NRFC)

NRFC facilitates and disseminates current research and proven and innovative strategies that encourage and strengthen fathers, families, and service providers.

Strong Fathers, Strong Families

Strong Fathers, Strong Families provides programs for schools and social services to help families—particularly fathers— become more involved in their children’s education.

211 Hotline

211 helps families access local resources and services to address any need, including food, funding, healthcare, housing, and transportation.

The Arc

The Arc is a network of more than 600 state and local chapters that provide information, services, and supports for people with intellectual and developmental disabilities and their families.

Disability Resources Monthly (DRM) Guide to Disability Resources on the Internet

Information about legal rights, financial resources, assistive technology, employment opportunities, housing modifications, educational options, transportation, and mobility services.

Easterseals

Easterseals provides essential services and on-the-ground supports, including early childhood programs for the critical first five years, autism and other developmental services, medical rehabilitation, employment programs, and more, enriching education, enhancing health, expanding employment, and elevating community to promote diversity, equity, inclusion, and access for all.

Facebook General Disability Support Groups

These Facebook groups offer education and support to parents and guardians in online community forums.

• Special Moms Network
• Special Needs Parents Support and Discussion Group
• Supporting Caregivers of Dependent Adults

Family Voices

Family Voices offers families support from more experienced families as they adapt to a new diagnosis, find providers, and learn to navigate the complex US health care system. Family Voices helps families address language, racial, and cultural barriers.

National Alliance for Caregiving (NAC)

NAC supports and empowers diverse family caregivers to thrive at home, work, and life, building partnerships in research, advocacy, and innovation to make life better for families.

The Red Treehouse

Red Treehouse supports the well-being of families and children with challenges, disabilities, and healthcare needs. They help individuals find information and connect to resources in their communities, while providing a robust platform for professionals and organizations to list services and events.

Special Needs Resource Project (SNRP)

SNRP is a guide for families of children with chronic health issues, disabilities, and special needs. SNRP helps parents and guardians learn the basic skills they’ll need to obtain specific resource information, equipment, and services.

Understood

Understood is a one-stop source for those with learning and attention issues and their families, offering a wide range of information, advice, and resources. Understood provides support so people who learn and think differently can thrive—in school, at work, and throughout life.

Family Reach

Family Reach is dedicated to removing the financial and socio-economic barriers standing between a cancer patient and their treatment, such as loss of income and out-of-pocket expenses. Family Reach delivers financial education, financial coaching, resource navigation, and emergency relief funds to patients and caregivers facing a cancer diagnosis so no family has to choose between their health and their home.

Giving Angels Foundation

The Giving Angels Foundation seeks to enhance the daily functioning of children with physical disabilities from lower-income families by awarding grants for life-changing equipment, medical supplies, essential family bills, specialized camps, and therapeutic toys.

Help Hope Live

Help Hope Live helps families obtain medical fundraising for the expenses that insurance doesn’t cover, such as those due to cell and organ transplants or catastrophic injuries and illnesses.

Miracle-Ear Foundation

The Miracle-Ear Foundation’s Gift of Sound hearing aid program is designed to meet the needs of people who otherwise would not be able to afford hearing health solutions.

Modest Needs

Modest Needs provides short-term financial assistance to individuals and families in temporary crisis who, because they are working and live just above the poverty level, are ineligible for most types of conventional social assistance but who (like many of us) are living one or two lost paychecks away from the kind of financial catastrophe that eventually leads to homelessness.

Molly Bear Foundation

Molly Bear provides supplemental financial support to families raising children with Trisomy 18 and the organizations and professionals that care for them.

PAN Foundation

PAN Foundation helps underinsured people with life-threatening, chronic, and rare diseases get the medications and treatments they need by assisting with out-of-pocket costs and advocating for improved access and affordability.

Ronald McDonald House Charities

Ronald McDonald House provides a home away from home that offers comfort, support, and resources to families who travel far from home for the medical care their child needs. They also provide meals, education for kids who are missing school, therapeutic support, and medical and dental care to families.

Small Steps in Speech

Small Steps in Speech assists children who have speech and language disorders by funding supplemental treatments not covered by insurance.

United Health Care Children’s Foundation

The mission of UHCCF is to provide medical grants to enhance the quality of life of children across the United States to help with medical expenses not covered, or not fully covered, by a family’s commercial health insurance.

Wheelchairs 4 Kids

Wheelchairs 4 Kids provides wheelchairs, home and vehicle modifications, as well as other therapeutic equipment to children that have limited mobility due to illness, accident, or abuse.

A Day in Your Shoes

Everything parents and professionals need to know about applying for and obtaining legal guardianship of dependent adult children.

Administration for Community Living (ACL)

ACL provides a list of federally-funded centers for independent living, state by state.

Child Residential Treatment Finder

The Child Residential Treatment Finder helps parents and guardians find residential, group homes, and out-of-home placements for children who need residential care.

National Council on Independent Living (NCIL)

NCIL provides information and resources for people with disabilities and their families to help them access independent living.

Section 811

Section 811 funding allows non-profit and state housing developers to offer affordable units to individuals with disabilities.

The American Bar Association (ABA) Commission on Law and Aging 

The ABA Commission on Law and Aging has created this practical tool to guide lawyers to implement less restrictive decision-making options for persons with disabilities. It also helps lawyers understand guardianship decisions and the supported decision-making process.

American Psychological Association DisAbility Resources Toolbox (DART) Toolkit II 

This APA toolkit highlights the basic entitlements of the Americans with Disabilities Act (ADA), Family Educational Rights and Privacy Act (FERPA), and Section 504 of the Rehabilitation Act.

Lambda Legal

Lambda Legal is committed to achieving full recognition of the civil rights of those living with HIV through impact litigation, education, advocacy, and public policy work.

The Native American Disability Law Center

The Native American Disability Law Center ensures that Native Americans with disabilities have access to justice and are empowered and equal members of their communities and nations.

Transgender Law Center (TLC) Disability Project

TLC is focused on promoting and integrating disability, deafness, and anti-ableism policies throughout the LGBTQ+ communities.

American Association for Marriage and Family Therapy

Detailed listings of over 15,000 marriage and family therapists trained in relational therapy and committed to positively impacting your relationships.

National Healthy Marriage Resource Center

This site offers advice for families on how to sustain a healthy marriage and work together through different issues that may arise including those related to disabilities.

ARCH Respite

ARCH provides help to families who are in need of respite support in their local community.

Lifespan Respite Care

Lifespan Respite Care helps coordinate systems of accessible, community-based respite care services for family caregivers of children and adults of all ages with disabilities and/or chronic conditions.

A Case for Smiles Coping Space

A Case for Smiles Coping Space offers support for families dealing with chronic illness. Resources include coping tips, information, and an online space for siblings of kids with disabilities or chronic illnesses.

The Center for Pediatric Traumatic Stress (CPTS)

CPTS provides information and strategies to help parents and guardians support the siblings of a chronically ill child.

• What About Siblings? Helping Siblings Cope
• ¿Qué hay de los hermanos?: Ayudar a los Hermanos a Enfrentar la Situación 

Sibshops

SibShops provide typically developing siblings with peer support and information in a lively, recreational setting, designed to allow the children to share their thoughts and feelings and to meet others who “get it,” in a supportive and playful space.

Best Buddies 

Best Buddies is a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development, and inclusive living for individuals with intellectual and developmental disabilities.

Friendship Circle

Friendship Circle provides assistance and support to individuals with special needs and their families by offering recreational, social, educational and vocational programming. Friendship Circle also provides support to individuals and families struggling with isolation, addiction, and other family-related crises.

National Wheelchair Basketball Association (NWBA)

NWBA guides the establishment of adapted basketball to meet the needs of many children with disabilities.

Special Olympics

Special Olympics provides programming in sports, health, education, and community building, to tackle the inactivity, stigma, isolation, and injustice that people with disabilities face.

ACLU Resource Library Supported Decision Making

The ACLU offers guidance and information to promote supported decision-making for adults with disabilities.

The Autistic Self-Advocacy Network

This self-advocacy network provides information about state-supported decision-making laws and offers strategies for success with supported decision-making.

National Resource Center for Supported Decision Making (NRC-SDM)

The NRC-SDM provides user-friendly guides and toolkits to help people with disabilities exercise their right to make choices, in areas like guardianship, education, and healthcare.

AAKOMA (African-American Knowledge Optimized for Mindfully Healthy Adolescents)

ProjectAAKOMA meets the mental health needs of youths of color by raising consciousness, providing accessible tools, and changing systems to provide better care.

Asian Mental Health Collective

The Asian Mental Health Collective makes mental health care easily available, approachable, and accessible to members of all Asian communities.

Asians Do Therapy

Asians Do Therapy provides help and guidance in finding therapy, reducing stigma, and increasing accessibility.

Inclusive Therapists

Inclusive Therapists offers listings of therapists who specifically welcome and celebrate people of all identities.

National Queer and Trans Therapists of Color Network (NQTTCN)

NQTTCN is a healing justice organization committed to transforming mental health for queer and trans people of color.

Therapy for Black Girls and Women

Therapy for Black Girls and Women provides listings of trusted, culturally responsive therapists to provide support that addresses the specific needs and concerns of Black girls and women.

Therapy for Black Men

Therapy for Black Men provides listings of therapists who are working to break the stigma among Black men that frames asking for help as a sign of weakness.

Therapy for Latinx

Therapy for Latinx provides resources to help the Latinx community heal, thrive, and become advocates for their own mental health.

Autism on the Seas

Autism on the Seas provides staff-assisted cruise vacations designed to accommodate adults and families living with children with disabilities, including, but not limited to, autism, Asperger’s syndrome, Down syndrome, Tourette syndrome, cerebral palsy, and other cognitive, intellectual, and developmental disabilities.

Enable My Trip

Enable My Trip allows users to search for their mobility requirements, i.e., ramps, wet rooms, hoisting equipment, etc. to help determine accessible travel destinations.

Black Virtual Wellness Directory

The Black Virtual Wellness Directory provides listings, by state, of Black therapists, psychiatrists, doulas, yoga teachers, mediators, and more, all devoted to Black mental health.

Deaf Latinos y Familias Organization

Deaf Latinos y Familias Organization is dedicated to working with Latino families with deaf children or deaf adults, integrating family history, traditions, values, and ASL into their lives.

DEEN (Disability Empowerment and Equality Network)

Advancing community inclusion by offering culturally and spiritually relevant support for families and individuals living with disabilities in Canada and the US.

National Asian American Pacific Islander Mental Health Association (NAAPIMHA)

NAAPIMHA raises awareness of the importance of mental health to an individual’s overall health and well-being, especially in Asian American, Native Hawaiian, and Pacific Islander communities.

Safe Black Space

Safe Black Space provides culturally specific strategies, resources, and healing circles to help Black people heal from historical and current wounds, both individually and collectively.

CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder)

CHADD provides information and resources, including education, advocacy, and additional resources for children and adults with ADHD.

Facebook Support Group: ADHD

Aspergers/Autism Network

AANE works with individuals, families, and professionals to help autistic people build meaningful, connected lives through socialization and supports.

Autistic Self-Advocacy Network (ASAN)

ASAN is a self-advocacy group that works to empower autistic people across the world to take control of their own lives and the future of their common community, and seeks to organize the autistic community to ensure that their voices are heard in the national conversation about autism.

Autistic Women & Nonbinary Network (AWN)

AWN provides support and resources to autistic women, girls, transfeminine and transmasculine nonbinary people, trans people of all genders, Two Spirit people, and all people of marginalized genders or of no gender. AWN promotes disability justice, gender and racial equity, neurodiversity, and trans liberation with a focus on transformative and restorative justice.

The Color of Autism

The Color of Autism connects families to trauma-informed and culturally competent support, working to end the stigma of autism spectrum disorder in communities of color and empowering families to lessen their isolation.

Facebook Support Group: Autism

Grupo Salto

Grupo Salto is a nonprofit organization that supports Spanish-speaking, low-income families who have autistic children.

Parent to Parent

Parent to Parent ensures access to quality emotional support for families of individuals with disabilities and/or special healthcare needs in all 50 states through hands-on assistance, training and technical help, and high quality tools and resources.

The Autism Community in Action (TACA)

TACA provides education, support, mentoring, and empowerment to families and individuals affected by autism.

Conduct Disorder Resource Center from the American Academy of Child & Adolescent Psychiatry 

AACAP provides consumer-friendly definitions and answers to frequently asked questions about conduct disorder.

Facebook Support Group: Conduct Disorder

Facebook Support Group: Oppositional Defiant Disorder

Oppositional-Defiant Disorder Resource Center from the American Academy of Child & Adolescent Psychiatry (AACAP)

AACAP provides consumer-friendly definitions and answers to frequently asked questions about oppositional defiant disorder in children and teens.

What to Do When Your Child Exhibits Dangerous Behavior

This resource provides parents and guardians with information about how to respond when their child is exhibiting dangerous behavior, when to seek help, and where to obtain support.

Facebook Support Group: Blindness and low vision

National Association of Blind Students

Part of the National Federation of the Blind, this group seeks to empower blind students to live the lives they want through organized activism, mentorship, leadership development, resource sharing, and more.

The Cerebral Palsy Guide

This resource aims to educate parents of children with cerebral palsy, including tips for making time for self-care and staying organized.

Facebook Support Group: Cerebral Palsy

United Cerebral Palsy (UCP)

UCP assists thousands of people with cerebral palsy and other disabilities, along with their families, in support of home ownership, health care reform, inclusive education, and competitive employment.

Caring Connections

Caring Connections provides free resources to educate and empower patients and caregivers to make decisions about serious illness and end-of-life care and services. CaringInfo’s goal is that all people are making informed decisions about their care.

The Center for Chronic Illness

The Center for Chronic Illness promotes wellbeing and decreases isolation for those impacted by chronic illness through support and education.

The EPIC (Empowering People with Invisible Chronic Illness) Foundation

EPIC provides support, advocacy, and tools to those affected by chronic illnesses.

Make-A-Wish America

Make-a-Wish grants life-changing wishes to children who are dealing with critical illness.

Parenting a Child with Life-Limiting Illness Toolkit

This toolkit helps families cope with chronic illness, providing education about preserving the family, information about special equipment, finances, and support, and additional resources to help parents manage their child’s illness and care.

Starlight

Starlight brings the very best in technology, play, and other fun experiences to distract and entertain pediatric patients as they navigate the stress and pain that can come along with any illness.

The Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation funds research and drug development, high-quality care, and helps people with cystic fibrosis and their families get the tools and support they need to lead healthy lives.

Facebook Support Group: Cystic Fibrosis

American Society for Deaf Children (ASDC)

ASDC provides a variety of supports, online articles, and resources. They are specially focused on giving children who are deaf and hard of hearing full communication access, particularly through the use of sign language.

Facebook Support Group: Deafness and Hard of Hearing Children

Hands and Voices

Hands and Voices’ mission is to support families with children who are deaf or hard of hearing without a bias around communication modes or methodology. They provide families with resources, networks, and information to support improved communication access and educational outcomes for their children.

The Down Syndrome Diagnosis Network connects, supports, and provides accurate information to parents—and the medical professionals who serve them—from the time of diagnosis through age 3. They also offer the Rockin’ Mom Retreat and, separately, the Rockin’ Dad Retreat, which offer moms or dads the opportunity get away for a couple of days to connect and recharge.

Facebook Support Group: Down Syndrome

National Down Syndrome Society (NDSS)

NDSS supports and advocates for the Down syndrome community by focusing on three key areas of programming: resources and support, policy and advocacy, and community engagement. NDSS offers resources to support individuals with Down syndrome, their families, and caregivers across the lifespan and hosts aware- ness events throughout the country.

Facebook Support Group: Eating Disorders

The National Eating Disorders Association (NEDA)

NEDA raises awareness, builds communities of support and recovery, funds research, and puts vital resources into the hands of individuals with eating disorders and their families.

Epilepsy Foundation

The Epilepsy Foundation provides essential information about seizure disorders, helps to educate, connect, and inspire the epilepsy community, and works to accelerate innovation and partnerships in epilepsy healthcare. The Foundation offers information specifically created for Black, Latine, and other communities.

Facebook Support Group: Epilepsy and Seizure Disorders

Connections for Life

Connections for Life offers assistance for supported living, self-direction, relationships, community membership, and flexible supports and services, providing opportunities for independence, personal freedom, and choice.

Facebook Support Group: Intellectual Disability

Rainbow Groups

Rainbow Groups are virtual support groups for self-advocates who are members of the intellectual or developmental disability community as well as the LGBTQ+ community.

SHEIDD (Sexual Health and Education for Individuals with Intellectual and Developmental Disabilities) 

SHEIDD promotes comprehensive sexual health education for young people ages 14–21 who have intellectual and developmental disabilities.

Facebook Support Group: Learning Disabilities

LD OnLine

LD OnLine offers information for parents, teachers, and other interested professionals in the areas of learning disabilities, legal issues, current research, instructional strategies, and personal stories.

National Center for Learning Disabilities (NCLD)

NCLD empowers parents and young adults with learning disabilities, working to transform schools and advocate for equal rights and opportunities.

Asian Mental Health Collective

The Asian Mental Health Collective supports emotional wellbeing, and challenges the stigma concerning mental illness among Asian communities globally.

Bi-Polar Disorder Resource Center from the American Academy of Child & Adolescent Psychiatry (AACAP) 

AACAP provides consumer-friendly definitions and answers to frequently asked questions about bipolar disorder in children and teens.

Depression and Bi-Polar Support Alliance (DBSA)

DBSA provides support for families to locate psychiatrists, psychologists, and other mental health professionals who specialize in depression and bi-polar disorder.

Facebook Support Group: Bipolar and Mood Disorders

Facebook Support Group: Borderline Personality Disorder

Institutes for Advancement in Mental Health (IAM)

IAM provides a support line staffed by a team of mental health counselors, as well as individualized supportive counseling, system navigation, and customized information and education for individuals living with chronic mental illness, and the broader community.

National Alliance on Mental Illness 

NAMI offers support and assistance designed to reduce the stigma of mental illness.

National Education Alliance for Borderline Personality Disorder: Family Connections Program

The Family Connections Program provides education, skills training, and support for people who are supporting individuals with borderline personality disorder and/or emotional dysregulation.

Silence the Shame

Silence the Shame seeks to reduce the stigma of mental illness and poverty, particularly in communities of color, by providing education, advocacy, support, and additional resources for adults, young adults, and children living with mental illness.

Facebook Support Group: OCD

The International OCD Foundation

The OCD Foundation connects individuals affected by OCD and related disorders with treatment resources and support; they also spread awareness about OCD and related disorders to help educate the public.

Obsessive-Compulsive Disorder Resource Center from the American Academy of Child & Adolescent Psychiatry (AACAP) 

AACAP offers consumer-friendly definitions and answers to frequently asked questions about OCD in children and teens.

Facebook Support Group: PDA

The Coalition for Barrier Free Living, Inc.

The Coalition for Barrier Free Living offers service coordination, advocacy, independent living skills training, and peer support to individuals who have mobility differences.

The Ehlers-Danlos Society

The Ehlers-Danlos Society is dedicated to saving and improving the lives of those affected by mobility issues, including the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions.

Alex’s Lemonade Stand Foundation

Alex’s foundation is changing the lives of children with cancer by funding impactful research, raising awareness, supporting families, and empowering supporters to help cure childhood cancer.

Caregivers’ Self-Care Guidebook / Guía para Cuidadores: A Guide to Taking Care of Yourself While Your Child Is in the Hospital

The Caregivers’ Self-Care Guidebook is designed to help families understand and manage hospital stays, and to help parents and guardians manage stress in order to be emotionally available for their children and family.

Physically Ill Child Resource Center from the American Academy of Child & Adolescent Psychiatry (AACAP)

AACAP offers consumer-friendly definitions and answers to frequently asked questions about physical illness in children and teens, and a broad array of additional resources.

Facebook Support Group: School Avoidance

Facebook Support Group: Selective Mutism

Facebook Self-Injury Awareness and Support Group

Self-injury Outreach and Support (SiOS)

An international organization, SIOS provides current information and helpful resources to individuals who self-injure, those who have recovered, and the caregivers, families, friends, teachers, and the health professionals who work with them.

Facebook Support Group: Spina Bifida

The Spina Bifida Association

Through the National Resource Center, the Spina Bifida Association provides one-on-one information and guidance for families, individuals, providers, and others whose lives have a connection to spina bifida.

Facebook Support Group: Substance Abuse

Substance Abuse and Mental Health Services Association (SAMHSA)

SAMHSA is the agency within the US Department of Health and Human Services (HHS) that leads public health efforts to advance the behavioral health of the nation and provides resources for families that need assistance with substance abuse, homelessness, mental health emergencies, and other critical matters.

Substance Use Resource Center of the American Academy of Child & Adolescent Psychiatry (AACAP)

AACAP offers parents, doctors, and other clinicians scientific information about the prevention and treatment of adolescent substance use.

The Center to Advance Palliative Care

Getpalliativecare.org provides clear, comprehensive palliative care information, including a care directory, for individuals living with a serious illness and their family members.

Courageous Parents Network

The Courageous Parents Network orients and empowers parents and others caring for children with serious illness, by providing resources and tools that reflect the experience and perspective of other families and clinicians.

Facebook Support Group: Terminal Illness

Here 4 U

Here 4 U is a community of parents and healthcare professionals who care for infants and children with chronic complex medical conditions or life-threatening illnesses, providing education, support, and encouragement.

National Coalition of Hospice and Palliative Care

The National Coalition of Hospice and Palliative Care works to accelerate research in the field of terminal illness and improve children’s access to high-quality palliative care by advocating for equitable policies and improved health outcomes, establishing best practices, and sharing resources.

Partnership for Parents

Partnership for Parents is a bilingual online source of support and information for parents of children with life-threatening ill- ness and grieving parents. All materials are available in
English and Spanish.

Together for Short Lives

Together for Short Lives supports families and professionals and seeks to ensure that children with life-threatening and life-limiting conditions and their families get the best possible care, wherever and whenever they need it.

Facebook Support Group: Tourette Syndrome

TAA (Tourette Association of America)

TAA raises awareness, advances research, and provides ongoing support to patients and families impacted by Tourette Syndrome and tic disorders.

Brain Injury of America (BIA) Guide for Families and Caregivers

BIA provides information about the nature and consequences of brain injury as well as help with decision-making, short- and long-term care options, and supporting the entire family.

Facebook Support Group: TBI